Facing challenges with strength and resilience.

Brianna and Gerardo are siblings, but that’s not the only bond they share. They were both born with the rare, genetic condition epidermolysis bullosa (EB), which causes fragile skin that blisters and tears easily.
As soon as Brianna was born it was clear to her parents, Leslie and Gerardo Sr., that something wasn’t right with their baby girl.

“We could tell she was in a lot of pain, and it was scary. She had no skin on her arms and legs,” recalls Leslie.

“Brianna spent two weeks in Cook Children’s NICU, where her parents learned to provide the special care she’d need at home. By the time Gerardo came along nine years later, Leslie and Gerardo Sr. had the wound wrapping routine down. It’s a tedious process that can take hours, but it’s critical to protecting delicate skin and preventing infection.

Both Brianna and Gerardo come to Cook Children’s nearly every week for specialist visits related to EB. With the help of their care teams and child life specialists, they have learned to manage the pain that comes with their condition. Gerardo especially looks forward to snuggles with facility dogs, Neely and Steve, while Brianna has found her voice through the Creative Arts Program, which provides a creative outlet for patients to express their feelings.
Despite the challenges she faces on a daily basis, Brianna maintains a positive outlook.

"I think my condition is really beautiful. It makes me look a little different, but you don't need to be afraid to come close and make a new friend," shares Brianna.

I think my condition is really beautiful. It makes me look a little different, but you don’t need to be afraid to come close and make a new friend.

Brianna, age 17

Brianna and Gerardo's story

Facing challenges with strength and resilience.